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Seattle Epidemiologic Research and Information Center (ERIC)

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Vietnam-Era Twin Registry Overview

The VET Registry’s goals include supporting and promoting scientific research of the Registry, safeguarding the Registry’s members and resources for future research, and maintaining a secure and updated Registry database and biospecimen repository, while treating our members with respect and maintaining their confidentiality.

The VET Registry is a database of information (called a “register”), study data (called a “data repository”), and biospecimens (called a “biospecimen repository”). Data collected from the twins and their family members are fully curated and documented for use. Longitudinal data are available on many health and disease phenotypes including PTSD, body mass index, diabetes, cardiovascular disease, depression and substance use. Biospecimens and related data obtained from a subset of twins are also available.
 
In the United States, there is a scarcity of twin registries, which has been a serious impediment to research. Several states possess twin registries. (1-2)The largest national twin registry in the US is the National Academy of Sciences Medical Follow-up Agency (MFUA) WWII Twin Registry. (3) 

The Vietnam-Era Twin Registry is the only other national registry of twins in the United States. (4)

 

 

 

 

 

 

 

 

 

 

 

References:


(1) Lykken D. T., et al. (1990). The Minnesota twin family registry: some initial findings. Acta Geneticae Medicae et Gemellologiae, 39(1): 35-70.
(2) Lilley E. C. & J. L. Silberg. (2013). The mid-atlantic twin registry, revisited. Twin Research and Human Genetics, 16(1): 424-428.
(3) Page, W. F. (2006). Update on the NAS-NRC twin registry. Twin Research and Human Genetics, 9(6): 985-7. 
(4) Tsai M. et al. (2013). The vietnam era twin registry: a quarter century of progress Twin Research and Human Genetics, 16(1):429-36.